There may come a time when you are told that your child isn’t going to get better. There is no right or wrong way to react to such devastating news. It is normal to feel that your world is falling apart, or to be angry, to not believe what you are hearing, or maybe you've known this moment would come. Everyone will experience grief for the life they thought their child would have.

This booklet was put together with the help of parents who have been in this situation. It explores relationships and talking to your children, how to support yourself, carrying on day to day life, palliative care, as well as the end of life. 

All the information in this booklet can also be found in our When your child won't get better section of the CLIC Sargent website.

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